I am completely beyond words đ˘
Phoebe has been completely let down by the #NHS. How can they not give an 8 year old the chance to live and grow up. In her mums words, they have just sentenced her to her death.
For those following these posts, this is our cousins daughter Phoebe. And the NHS have refused to allow her the Liver transplant she will need to survive. Because the cancer âmightâ come back.
Iâm racking my brains about how I can help as Iâm feeling pretty useless right now. I feel like we need to get this story far and wide but I donât know how.
These are her mums words below. Please read, share and if you have any ideas Iâm all ears.
âââââââââââââââââ
No.
They said no. That means we canât even go private in this country. Theyâve effectively blacklisted herâbecause it could come back. Yet, at the same time, theyâve admitted the transplant is viable.
They spoke about the âsupply of livers and donorsâ as if that justified the refusal. Leedsâ oncology team is completely at odds with both our own oncologist and the leading expert in sarcomas.
I told them, outright, that they had just sentenced her to death.
The call itself was unbearableâit began with ten minutes of them apologising for their lack of communication. I finally had to stop them and ask the only question that mattered: âAre you saying yes, or no?â
Now, our oncologist is reaching out to a centre in Paris to see if theyâll do the transplant instead.
When I asked how we could appeal this decision, they didnât even know. Imagine thatâlives hanging in the balance, and they canât tell us how to challenge their ruling.
But I will not let this go. I canât. Every delay is time stolen from us, and weâre running out of time. Weâre closer to the end than we should be.
The transplant is viableâthey told us that themselves. And yet, here we are. I can barely think straight, I can barely speak.
All I know is this: I can not lose our little girl.
#phoebes_challenge
#cancersucksđ
https://lnkd.in/eMcjq4DN
Go fund me link: https://lnkd.in/eMcjq4DN
Phoebe has been completely let down by the #NHS. How can they not give an 8 year old the chance to live and grow up. In her mums words, they have just sentenced her to her death.
For those following these posts, this is our cousins daughter Phoebe. And the NHS have refused to allow her the Liver transplant she will need to survive. Because the cancer âmightâ come back.
Iâm racking my brains about how I can help as Iâm feeling pretty useless right now. I feel like we need to get this story far and wide but I donât know how.
These are her mums words below. Please read, share and if you have any ideas Iâm all ears.
âââââââââââââââââ
No.
They said no. That means we canât even go private in this country. Theyâve effectively blacklisted herâbecause it could come back. Yet, at the same time, theyâve admitted the transplant is viable.
They spoke about the âsupply of livers and donorsâ as if that justified the refusal. Leedsâ oncology team is completely at odds with both our own oncologist and the leading expert in sarcomas.
I told them, outright, that they had just sentenced her to death.
The call itself was unbearableâit began with ten minutes of them apologising for their lack of communication. I finally had to stop them and ask the only question that mattered: âAre you saying yes, or no?â
Now, our oncologist is reaching out to a centre in Paris to see if theyâll do the transplant instead.
When I asked how we could appeal this decision, they didnât even know. Imagine thatâlives hanging in the balance, and they canât tell us how to challenge their ruling.
But I will not let this go. I canât. Every delay is time stolen from us, and weâre running out of time. Weâre closer to the end than we should be.
The transplant is viableâthey told us that themselves. And yet, here we are. I can barely think straight, I can barely speak.
All I know is this: I can not lose our little girl.
#phoebes_challenge
#cancersucksđ
https://lnkd.in/eMcjq4DN
Go fund me link: https://lnkd.in/eMcjq4DN